Archive for the ‘polycythemia vera’ Category

Polycythemia Vera treatment in NW Fla seems to be not-so-good

Wednesday, May 7th, 2008

My dad has Polycythemia Vera (PV). It’s a form of cancer basically. It is an abnormal increase in red blood cells due to excess production of the cells by the bone marrow. It usually strikes people in their 70s (my dad is 65), and is supposedly a “rare, chronic disease“. But my dad and two of his brothers have had it (maybe the other brother had it too, but he was captured in Vietnam and he got left there when the US pulled out).

So, my dad goes to doctors down in Pensacola FL who are complaining that the insurance my dad isn’t paying them enough. UGH!! I want to go smack someone.

I think they need to come up here to Dana Farber.  My mom needs to learn how to talk to those doctors so they take her seriously. Y’all just don’t know how important class is to get services in that part of the country. I wish I could go for just one visit.

I just wish they would come up here for a little while. Before it gets cold and they wouldn’t want to come.

polycythemia vera

Thursday, April 17th, 2008

my dad has it - (so did/does 2 of his siblings). I don’t have time to blog too much but I want to save some links. I’ll do some organizing after finals..

http://www.ncbi.nlm.nih.gov/pubmed/15837627

http://query.nytimes.com/gst/fullpage.html?res=9E0DE6DB1039F936A3575BC0A964948260

http://racinnews.com/mpd.htm

http://physicians.dana-farber.org/directory/profile.asp?dbase=main&setsize=10&display=Y&nxtfmt=r&gs=r&picture_id=0000050&lookup=Y&pict_id=0000050

http://www.hometownhazards.com/2007/10/ap-story-examines-local-polycythemia.html

http://www.dante7.com/archives-nov07.html

This shows an image -

http://www.atsdr.cdc.gov/sites/polycythemia_vera/index.html

http://www.abstracts2view.com/hem07/view.php?nu=HEM07L1_1871

http://www.dsf.health.state.pa.us/health/lib/health/epidemiology/TamaquaAreaCancerIncidenceStudy1996-20022.pdf

http://www.carbonwaters.org/newsitems/pv061106ATSDR.htm

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