A UK study finds that gene for autism is linked to the gene for genius. Makes sense to me.
I enjoyed this post that analyzed one of Jenny McCarthy’s media events to hype her new book. This post talks about the costs of autism treatment. Our work is providing treatment costs for children under 12 with an autism diagnosis. Not really helpful to me, but at least it’s a start.
Claire Danes will be playing Temple Grandin in a movie about her life. It should be good - and probably pretty painful to watch I would guess.
The panel at AANE about Asperger’s Syndrome and college went pretty well. There were two moms on the panel (I was one of them), two students (one a MLS candidate yay!!), two college representatives, and two social coaches.
Larry Welkowitz, one of the college reps gave a very thorough wrap-up over on his blog. Larry’s been working with the topic of Aspies and college for several years, and it was great to meet him in person!
I talked about using technology to help your kid when they call you freaking out. If they text you instead, you can help them figure out that next step they need to take. They won’t have to leave the room, deal with language, etc. They can just text back and forth with you, and look like any other normal college kid.
Maybe I need to write a short course on Texting for parents. 
Someone on Twitter asked me for links about Asperger’s Syndrome. I thought I would compile something quick.
Those are the resources that come to the top of my head. Maybe I should add intuition. You know what your child is capable of. Don’t let people discount that information.
Anyone have any other resources to add?
As the start of school gets closer, there are more and more searches such as “best school in Florida for Asperger’s”. There seems to be a real need for that sort of information.
Well if you are in Tallahassee, and your kid is going to middle school, stay away from RAA whatever you do! That is where the evil principal is. I would imagine school is still what you make it, and as a parent you’ll have to do alot of educating of school staff.
The other thing I think is needed is some sort of information for parents on how mentor their children to advocate for themselves, and then to let go. How to let your kids fail a little so they will be more prepared for life. It’s hard if you have someone you need to protect from so many things, to think about little your kids fly a little. I never saw guides on how to know when to do it, how to know how much to let them go, etc.
That is a hard thing for a parent to learn in any situation, but when you have been the advocate for so long it’s really hard to know how and when to step back. I’m still learning that lesson.
I have been neglecting this blog, blame it on midterms.
But I wanted to post this story about how Autism Speaks lobbied back-room deal that made a bill to ensure insurance companies covered treatments for autistic kids pretty much useless. The autism community rallied around the PA House Speaker, the one who introduced the bill (who has a nephew with autism btw). Apparenty Autism Speaks was playing political games to get a national insurance policy in place (would that too be watered down? Is this what happened in FLA - where autism services are horrendous?)
Wow. Autism Speaks has an “Autism Votes” initiative. They are a very powerful lobbying agency. And they think people like my daughter need to be cured. Very Very Scary.
I’ve been thinking about the teacher who let the class vote on whether a disruptive classmate should be allowed to return to class. I don’t have anything from my daughter’s younger years to compare this to. Except RAA Middle School in Tallahassee Florida.
This school had a dress code, just like the elementary school where the kid got voted out of class. This school also had an insane principle. She was cruel to my daughter in many ways. Brianna was never disruptive, she is in fact very shy. (I know, hard to believe a child with my genes could be shy, but it’s true). She always was concerned with following the rules to the letter - she still gets very upset if she is breaking a rule of any sort.
Well, RAA’s dress code required the students to wear a belt. Brianna had at least two detentions for not wearing a belt. For the second offense, she realized she had forgotten it and went to the office to tell them. She started crying, and the principal later told her - oh I remember you - you are the little girl who cries. The dress code also required that all shirts be tucked in. I can’t remember if she had problems with that - it seems like she did.
The worst violence inflicted on my daughter by that woman was when Brianna was tested for disabilities. She had a 25 point split between her non-verbal and verbal IQ scores. They decided that even with this clear indicator of a disability, she did not qualify for services. I asked what would happen to her if she failed - as she was doing great on all of her tests, she was having trouble keeping up with assignments. Obviously she was learning, what would holding her back do for her? I will never forget that evil woman’s face as she told me: “She will learn to be obedient and follow the rules. That is what she will learn”.
Thank goodness her pediatrician saw things differently - he took the test scores and sent her someplace that diagnosed her with sensory integration disorder. And thank goodness I am stubborn as hell. I knew that principal was wrong. I knew I had to figure out how to help my daughter.
Which leads me to this:
The environment in which the teacher who allowed the class to vote that child out of the classroom may not be an environment which allows her to understand differences. The school has a dress code - that is an indicator of control. Most of the public schools who have instituted dress codes are in lower socio-economic backgrounds. Thanks to Jeb Bush and One Florida, Florida schools must attain a certain grade or they lose funding. Many of the Florida schools have used the dress code as means of instilling discipline -control - in their students. Even though studies have proven that the uniforms don’t really change things.
For students with sensory difficulties, being required to wear clothing that is uncomfortable or to keep the clothing tucked in can be a nightmare. The sensory difficulties can induce a fright or flight response. I wonder if that is at the root of this kid’s outbursts - maybe just having an accommodation for the sensory issues induced by the uniform would help.
To someone who has never had to deal with a child with sensory issues, the meltdowns do look like behavioral issues. Think of this teacher for a sec, if the sensory issues are at the root of the problem here. She probably has no idea of sensory issues, she just knows she has to make the little boy act a certain way. How will she ever learn if the entire autism community comes down on her? What she did was awful, but we have a responsibility to turn it into a teaching moment. She can’t hate kids and be a kindergarten teacher - I just don’t think it’s possible.
But she could have misinterpreted what was happening with this little boy. This little boy’s parents are also new to what his issues are. Those of us who have been down that road with our kids, or those of you with the same issues, please try and show some patience. Let’s try to make something good come from this very horrible situation.
If anyone from Morningside Elementary reads this, this article would be a good place to start. Actually, maybe admitting that what you did was wrong would be the first place to start. Then working to educate yourselves and the parents of the little boy about how to help him succeed in school should be your goal.
Dear Mrs. Cully,
My name is Gina Minks. I am a Florida native, although I now reside in New England. I am a product of Florida public schools in Okaloosa county. My Undergrad degree in Information Studies in from Florida State University, and I am currently pursuing a Master’s Degree in Instructional Systems from the Educational Psychology and Learning Systems Department at FSU. Currently I work as a Senior Technical Education Specialist at a global information company.
However, my most important role is as the mother of two children. My children also started their educational careers in the public school systems of Florida. One of those children was diagnosed as having Asperger’s Syndrome four years ago, right before she headed off to college.
I am writing to express my shock concerning a story that is circulating about one of your kindergarten teachers, Wendy Portillo. From what I can gather from the stories, she used a student’s constant trips to the office as a way to enhance a classroom lesson on tallying. She had the boy stand at the front of the class, and had each student vote on whether the child should be allowed to return to class. Once the class voted him off for being annoying and disgusting, she had the boy figure out where he should spend the rest of his day, since “no one in the office liked him either” and he could not go home since his mom was at work.
As an educator, I cannot fathom ever treating a student in this fashion. In fact, I would lose my job if I were to try this sort of instructional method with an adult. Apparently the boy’s behavior was disruptive enough to merit you recommending that he be tested for an ASD. I applaud you for sending this boy to testing so early, I would have given anything if my daughter had been diagnosed at that age.
Unfortunately, my daughter had to endure 12 years of taunting and teasing before we figured out why she was different. That bullying never came at the hands of the teachers, however. The teachers my daughter had always tried different ways to reach my daughter, and were receptive to trying different methods I found as we narrowed in on the cause for her different ways of behaving and thinking.
As a parent, I am just floored and speechless over the methods of this teacher. I cannot imagine what I would have done if either of my children had been treated in that manner, or if they had been instructed to participate in this type of group project. I fear your staff member has not only made an irreparable mark on the student who was “voted off the classroom”, but also has made lasting marks on the peers of this boy.
Please act immediately to repair the damage that has been done. I can’t imagine that a woman who teaches five-year-olds could have initiated this activity because she hates children. I believe she probably thought at the time that this was a good learning lesson. As a mom, I strongly suggest that your team gets training on what autism is, how it presents in children, the different ways that girls present, and what are the best ways of engaging these children in the classroom. The methods this teacher used had the opposite effect of what I believe the teacher was intending.
Please do the right thing by this boy and all of the other different minded children in your school. Please make sure your teachers understand that this sort of lesson is completely inappropriate for any child. Please use this as a teaching moment for the children in that class, so that they can learn about bullying and the effects it has on other people.
Sincerely,
Gina Minks
http://www.ginaminks.com
Bev at Asperger’s Square 8 posted this story about a 5-year-old (that would make him a kindergartener I think..) who was voted out of the class by his peers.
Seems he got sent to the office for being disruptive. Once the boy came back to cliass the teacher, Wendy Portillo, asked the other students if they were ready for him to return. She had the little boy stand in the front of the class, and one by one the other kids told him what they thought of him. They called him “disgusting” and annoying”. Then they voted whether or not he should get to stay in class. They voted him off the classroom, and the boy spent the rest of the day in the nurse’s office.
She claims she did this because the class was learning about tallying (WORST.SCAFFOLDING.EVER!!).
Oh, did I tell you that the boy is being evaluated for an autism spectrum disorder? The same one my daughter has?
The Autistic Self Advocacy Network has the list of who (and how) you can contact to voice your shock and disgust about this issue. Details here. I’ll write one and post it later. I am too upset and angry to do anything respectful at the moment.
If Alex’s family happens to read this: I am a Florida native (now living in New England). I know how bad the schools are for kids on the spectrum, but we didn’t experience anything horrible until middle school. Please love your baby and let him know he IS special, and no one is ever allowed to tell him any differently.
MEH!!!!!!!!!!!!!!!!!!
Bev over at Asperger Square 8 has had a couple of thought-provoking posts on the topic of what is “awareness“.
I thought I relate an awareness story (it beats writing my paper).
Brianna and I were in ToysRUs, who have a program going on right now with Autism Speaks. So there are posters up all over the store, with puzzle pieces missing. Brianna say this one:
….and gave it a new caption. It was something like “Doh! The puzzle is why can’t you people figure this out? I’m fine - it’s the rest of you that don’t understand!”
Anyways, maybe Brianna will comment and tell me how I got that wrong.
