Archive for July, 2008

Google Searches on Asperger’s Syndrome

Wednesday, July 30th, 2008

As the start of school gets closer, there are more and more searches such as “best school in Florida for Asperger’s”. There seems to be a real need for that sort of information.

Well if you are in Tallahassee, and your kid is going to middle school, stay away from RAA whatever you do! That is where the evil principal is.  I would imagine school is still what you make it, and as a parent you’ll have to do alot of educating of school staff.

The other thing I think is needed is some sort of information for parents on how mentor their children to advocate for themselves, and then to let go. How to let your kids fail a little so they will be more prepared for life. It’s hard if you have someone you need to protect from so many things, to think about little your kids fly a little. I never saw guides on how to know when to do it, how to know how much to let them go, etc.

That is a hard thing for a parent to learn in any situation, but when you have been the advocate for so long it’s really hard to know how and when to step back. I’m still learning that lesson.

very busy

Sunday, July 20th, 2008

Too busy to blog. I’ve been keeping up over at Adventures in Corporate Education, and I never stop twittering anymore.

So what’s up?

  • Grad school summer semester’s almost over (I should finishing some of that work right now..)
  • Work - finishing a big project (coming to ATL in August), and working on social media as a process on the side
  • Kids - Bri is looking for a job, Kenny is just all over the place this summer (in Philly this weekend for a conference)
  • Fall Semester - getting myself and Kenny all set for the new semester
  • home- well the house is falling to pieces. :) And I haven’t been able to put anything up, hopefully I will at least get some pickles done before I go to GA.
  • Planning to go see Stacey in NYC in Aug
  • I think I need to plan a mini-vaca!!

What’s up with y’all?

The state of PA tells Autism Speaks to shut up

Friday, July 4th, 2008

I have been neglecting this blog, blame it on midterms. :)

But I wanted to post this story about how Autism Speaks lobbied back-room deal that made a bill to ensure insurance companies covered treatments for autistic kids pretty much useless. The autism community rallied around the PA House Speaker, the one who introduced the bill (who has a nephew with autism btw).  Apparenty Autism Speaks was playing political games to get a national insurance policy in place (would that too be watered down? Is this what happened in FLA - where autism services are horrendous?)

Wow. Autism Speaks has an “Autism Votes” initiative. They are a very powerful lobbying agency.  And they think people like my daughter need to be cured. Very Very Scary.